Happy New Year from the Baby Nation! In this interview, episode #32, I chat with my sister Nadia and her husband Chad about their 1.5-year-old son Charlie. After Charlie was born in May 2016 with spina bifida, he spent six weeks in the NICU. As part of this interview, Nadia and Chad talk about the help they received from their friends in Wisconsin who visited the NICU often with food, gifts, hugs, and plenty of music.
Charlie’s parents describe him as a fighter with strength and determination, characteristics clearly evident by his perseverance in climbing on objects and being able to stand up on his own. Also in this conversation, Nadia and Chad share details about the medical and holistic alternative therapies they have found useful in helping Charlie increase his strength and movement. Toward the end of the conversation, Nadia and Chad share advice for parents just learning of a spina bifida diagnosis and they also talk about the genetic testing that they did through @23andme.
Be sure to check out the family's YouCaring fundraising page at youcaring.com/rallyforcharlie! Also, some of the resources that Nadia and Chad mentioned on the episode are: spinabifidanaturally.com, Shriners Hospitals, Anat Baniel Method, and the Feldenkrais Method. The best way to connect with the family is through email: firstname.lastname@example.org.